Resources

EEG: An Introductory Atlas

Electroencephalography (EEG): An Introductory Text and Atlas of Normal and Abnormal Findings in Adults, Children, and Infants was created and published by experts in EEG interpretation from the American Epilepsy Society. Designed to facilitate learning at all levels of EEG education, this atlas is useful for learners new to the EEG field.  This publication is a free learning resource for EEGers of all levels that is highly applicable to the daily practice of EEG interpretation.

Access the full text  »

CURE: Education Enrichment Fund: for patients, families and caretakers

Citizens United for Research in Epilepsy (CURE) offers a scholarship program that consists of a one-time scholarship (up to $5,000) for those living with epilepsy, family members and caregivers, to be used toward coursework to advance personal knowledge in research, health education, advocacy and/or awareness in relation to their experiences with this neurological disease.

The deadline to submit applications is April 15, 2017.

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June Jessee Memorial Foundation Fund at St. Louis Children’s Hospital

Caring for children like June is both incredibly rewarding and exhausting – a physically, emotionally and financially draining process that often impacts young, working class families just beginning to save for the future. High co-pays for a growing number of specialists, medical equipment, medications, frequent hospital stays – the costs can quickly overwhelm. To be at their best for a child, it’s also essential that parents and caregivers take time for themselves, but many times, insurance coverage falls short of in-home nursing care or overnight respite.

The June Jessee Fund was established to ease the financial hardship of out-of-pocket medical expenses on families who love and care for children with medically complex conditions.

For information, please contact us.




Missouri First Steps

For children, birth to three years of age, with disabilities or developmental delays. The program is designed to meet the needs of families related to enhancing their child’s development, learning, and participation in family and community life, providing:

*if child has issues with vision or hearing

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Missouri Department of Mental Health

Similar to First Steps; assigns a case manager who will schedule an in-home check every six months.

Administers:

  • Respite hours
  • Sarah Lopez Medicaid Waiver – does not require applicants to be eligible for Medicaid, providing resources and assistance when other means of funding have been exhausted.

Covers:

  • At-home nursing care
  • Overnight respite
  • Medicine and formula
  • Medical equipment
  • Doctor office copayments
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United Healthcare Children’s Foundation

The UnitedHealthcare Children’s Foundation® (UHCCF) provides medical grants to qualified families enrolled in employer-sponsored health coverage, or who have purchased an individual policy, to help pay for child health care services such as speech, physical or occupational therapy, prescriptions, formula, and medical equipment such as wheelchairs, orthotics and hearing aids.

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St. Louis Arc

Individualized services for people with intellectual and developmental disabilities and their families, including:

  • Respite hours (hours must be approved by DMH)
  • Capable Kids and Families: lending library of toys and equipment for children with developmental disabilities (has waiting list)
  • Family play dates, music classes and more
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Wonder Baby

Dedicated to helping parents of young children with visual impairments as well as children with multiple disabilities. Here you’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child, as well as links to meaningful resources and ways to connect with other families.

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Children’s Hospital

Palliative Care – a must!  Manages child’s complex care and pain, normalizes the process as much as possible and provides a nonjudgmental sounding board.

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CURE: Education Enrichment Fund: for patients, families and caretakers

Citizens United for Research in Epilepsy (CURE) offers a scholarship program that consists of a one-time scholarship (up to $5,000) for those living with epilepsy, family members and caregivers, to be used toward coursework to advance personal knowledge in research, health education, advocacy and/or awareness in relation to their experiences with this neurological disease.

The deadline to submit applications is April 15, 2017.

Visit Website »