Caring for children like June is both incredibly rewarding and exhausting – a physically, emotionally and financially draining process that often impacts young, working class families just beginning to save for the future. High co-pays for a growing number of specialists, medical equipment, medications, frequent hospital stays – the costs can quickly overwhelm. To be at their best for a child, it’s also essential that parents and caregivers take time for themselves, but many times, insurance coverage falls short of in-home nursing care or overnight respite.
The June Jessee Fund was established to ease the financial hardship of out-of-pocket medical expenses on families who love and care for children with medically complex conditions.
For information, please contact us.
Similar to First Steps; assigns a case manager who will schedule an in-home check every six months.
- Respite hours
- Sarah Lopez Medicaid Waiver – does not require applicants to be eligible for Medicaid, providing resources and assistance when other means of funding have been exhausted.
- At-home nursing care
- Overnight respite
- Medicine and formula
- Medical equipment
- Doctor office copayments
The UnitedHealthcare Children’s Foundation® (UHCCF) provides medical grants to qualified families enrolled in employer-sponsored health coverage, or who have purchased an individual policy, to help pay for child health care services such as speech, physical or occupational therapy, prescriptions, formula, and medical equipment such as wheelchairs, orthotics and hearing aids.Visit Website »
Individualized services for people with intellectual and developmental disabilities and their families, including:
- Respite hours (hours must be approved by DMH)
- Capable Kids and Families: lending library of toys and equipment for children with developmental disabilities (has waiting list)
- Family play dates, music classes and more
Focuses on gifting medical equipment, providing unique education and recreational programs, funding therapy and transportation.Visit Website »
The Kids Assistive Technology program (KAT) can provide limited funding for assistive technology, vehicle access modifications and some home access modifications for children under age 21.Visit Website »
The Arya Foundation serves to provide financial aid for the purchase of medical supplies and equipment for children with medical conditions.Visit Website »
Ultimate list of grants and resources for families with special needs.Visit Website »