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For questions, concerns, or just and opportunity to connect with other families who understand, please submit your contact information in the spaces below. We’d also love to hear from you if you have additional resources to add!

For questions about fund eligibility, please contact your neurologist or social worker at St. Louis Children’s Hospital.  The fund is administered through the hospital’s social work department who makes sure the patients’ and families’ needs qualify for support under the fund guidelines. 

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