A Different Kind of Hope: The Diagnostic Odyssey Can Be Solved Even After Your Child’s Death
June had an undiagnosed, neurological disorder, which means we have no idea what caused...
Reflecting on the Rett Spectrum Family Conference at St. Louis Children’s Hospital
Last night, I had the opportunity to speak at the Rett Spectrum Family Conference...
👻 5 Halloween Tips for Medically Complex Families
Happy (almost) Halloween! We understand that holidays can be difficult for families of children...
10 Tips For Your Next IEP Meeting
The kids are back in school and for many families, that means resuming IEP...
Advancing Patient Care By Providing Support to Parents and Caregivers
What gets in the way of parents feeling like “good parents” and why is...
Featured On
