Finding Joy This Holiday Season
“Christmas time is hard in the life of a special needs family. It’s hard,...
Other People’s Losses
Kelly Cervantes, a mother in the medically complex/epilepsy/undiagnosed community, recently shared news of her...
Free Emotional Support and Services for Parents and Caregivers
The June Jessee Memorial Foundation has partnered with St. Louis Children’s Hospital and Washington...
A Case to End the Overwhelm for Parents of Medically Complex Children
The day after my daughter, June, was born we learned she might have hearing...
The Benefits of Palliative Care
We benefited so much from palliative care with June, but I didn’t learn about...
Tracking the Struggles and the Joys
I am an inveterate note-taker. Back in high school, I carried around a spiral-bound...
Feeling Left Out of the Holidays?
Following Thanksgiving, we rush into the holiday season. Christmas music starts playing on the...
Transforming Personal Struggle into Community Support
My family benefited so much from the toy-lending library and support group Capable Kids...
Connected by Courage
The human spirit is what links us and having someone to talk to when...
Giving Thanks for Learning to Live with Limitations
As Thanksgiving approaches, some of us have expectations for how our family should look....
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