Free Emotional Support and Services for Parents and Caregivers September 20, 2019 Blog The June Jessee Memorial Foundation has partnered with St. Louis Children’s Hospital and Washington... Read more
A Case to End the Overwhelm for Parents of Medically Complex Children August 14, 2019 Blog The day after my daughter, June, was born we learned she might have hearing... Read more
The Benefits of Palliative Care June 1, 2019 Blog We benefited so much from palliative care with June, but I didn’t learn about... Read more
Tracking the Struggles and the Joys January 22, 2019 Blog I am an inveterate note-taker. Back in high school, I carried around a spiral-bound... Read more
Feeling Left Out of the Holidays? December 22, 2018 Blog Following Thanksgiving, we rush into the holiday season. Christmas music starts playing on the... Read more
Transforming Personal Struggle into Community Support November 30, 2018 Blog My family benefited so much from the toy-lending library and support group Capable Kids... Read more
Connected by Courage November 26, 2018 Blog The human spirit is what links us and having someone to talk to when... Read more
Giving Thanks for Learning to Live with Limitations November 20, 2018 Blog As Thanksgiving approaches, some of us have expectations for how our family should look.... Read more
Handling Halloween, No Hiding Required October 31, 2018 Blog As my first Halloween as a new mother approached, I grew increasingly anxious. This... Read more
Dear Earlier Self: Yes, You Will Dream Again October 16, 2018 Blog My husband, Matt, is an avid tennis player. When I was pregnant with June,... Read more