Newsletter April 2021

Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Supporting Community, Celebrating June
Throw kindness around like confetti! Please support our spring campaign in celebration of June’s birthday and leading up to Give STL Day on May 6th. Click here to learn more and make a donation. Thanks to Goldsmith Pharmacy, all contributions will be matched (up to $15,000) — doubling your impact!

On the Blog
“This year, I think I miss my dreams for June most of all.” In honor of June’s birthday, read Genny’s latest essay, “Shattered Dreams: Life Without June on Her 9th Birthday”.

Impact
COVID-19 has been especially devastating for families of children bravely facing medically complex, neurological conditions. By continuing to provide uncomplicated financial assistance and pivoting programs to virtual formats, we are helping to ease the challenges and make each day a little bit easier.

Bookmarked
“God’s answer to my prayers was quite different from the answer I’d been searching for…” Read Genny’s reflection on the book Hope Will Find You (Levy, N., 2010).  

Virtual Events
April was a busy month of connecting with our community through Music Therapy, Trauma-Informed Yoga, and a Coffee Talk. Our virtual events continue to reach new families from coast to coast. Sign up here!

Resource Spotlight: Self-care
Check out our latest self-care downloads, the H.A.L.T.S. assessment and Mindfulness Body Scan exercise. Both are discussed in our latest Navigating Neurological Conditions Webinar: Taking care of yourself while caring for your child.