Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

TODAY Parents
Genny has garnered nearly 75,000 readers as a Community Contributor for the TODAY Parenting Team helping to further the reach of JJMF’s mission. Find her latest post, “Letting go of guilt: It’s OK to feel relief” featured on the TODAY Parents Facebook page. Follow Genny’s Contributor page and be sure to ‘Vote up’.

Resource Spotlight | Genetic Counseling
ICYMI: JJMF’s Navigating Neurological Conditions webinar with Genetic Counselor Erin Beaver dropped in December. Watch, read, or listen to this in-depth conversation. You can also find all of the valuable genetic counseling resources she references in the webinar here.

Bookmarked
Bird By Bird (Lamott, A., 1995) Lamott pulls the curtain behind the mysteriousness of writing a book. Spoiler alert: there isn’t really a secret to getting started. Whether you are looking to write about your own story or just want a good book about life and pursuing a dream that makes you feel alive…this book is laugh-out-loud funny!

On the Blog
Look for guest bloggers to pop into the Sorry to meet you this way blog in 2022! JJMF’s Virtual Yoga instructor Colleen Caul of InspireMovement shares her trauma-informed approach to the practice along with quotes featured during last month’s virtual session, themed Honoring Grief & Loss. Read Colleen’s post and sign up for the next Virtual Yoga session THIS Saturday morning.

Community Connections
We kicked off our 2022 virtual community connections with Music Therapy and Trauma-Informed Yoga. February is full of virtual events! The Self-Love Workbook for Women Workshop “Book Club” is back, plus Coffee Talk, and of course Yoga and Music Therapy. Don’t miss out!

Did you know?
The JJMF hosts a private Facebook group for families facing undiagnosed, neurological conditions — a place to connect, post questions and tips, share concerns, and even frustrations. Our goal is to give families a sense of community. Together we can find relief and strength from our collective experiences and knowledge. Join here.