Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Community Support
Mom’s Valentine’s Day Connection Event with Char’s Sweet Spreads
Last Sunday, JJMF Moms came together for an afternoon of connection, creativity, and delicious fun. JJMF Youth Board member Charlotte Kittner, owner of Char’s Sweet Spreads, guided the group in crafting their own unique Valentine’s Day charcuterie board. The group of moms enjoyed connecting with each other, recharging by tapping into their creativity, and indulging in festive treats.

Impact
Meet Davis
Davis is an amazingly courageous kid whose family is part of the JJMF community! Davis adores his little sister and enjoys spending time with his family. He loves being outside on his swing or going for walks in his stroller.

The JJMF recently extended some financial assistance to Davis’ family. In our recent post, his mom, Amanda, shared how much she appreciates both the support itself, as well as how simple the process was to secure it.

Building Awareness
Neuro Knowledge
This new monthly social media series aims to demystify a complex topic, share information, and increase widespread awareness and understanding—as it relates to serving our courageous community of children with complex neurological conditions and their families.

First up: What defines a complex neurological condition?

Children with a complex neurological condition typically have one or more severe, chronic neurological diagnoses that limit their ability to function or develop normally—and require substantial healthcare services and treatments—managed on an ongoing basis, by three or more sub-specialists. These children often require regular or prolonged hospitalization and are frequently dependent on technology such as a G-tube, tracheostomy, or ventilator, and/or are wheelchair dependent. The JJMF provides relief, support, and connection to help these courageous kids and their families.

On the Blog
Resetting in the New Year
For parents and caregivers of medically complex children, life can often feel chaotic and out of control. In this post, JJMF Community Engagement Manager, Karlita Blackwell, shares some tips to help mentally “reset” your mind and body as you embark on a brand new year.

Volunteer Spotlight
Meet Charlotte!
JJMF has some of the BEST volunteers! This month, we’re featuring the amazing Charlotte Kittner. Along with her friend Trudy Redmond, Charlotte found a passion for the JJMF while making beaded “STRONG” bracelets for our Month of June care packages. During this time dedicated to serving JJMF, the two developed the idea to found the JJMF Youth Board. Serving in a Youth Board leadership role, you can often find Charlotte helping at JJMF events, like the Not-so-Haunted-House Halloween Party at The Magic House, family connection events, An Evening of Joy, the Youth Board’s pickleball fundraiser, and more. Read more about this incredible young lady—including how she’s putting her creative charcuterie skills to use—in our post here. Thank you, Charlotte, for all your compassion, creativity, and dedication to supporting the JJMF community!

We’re Hiring!
Unique Opportunity to join JJMF!
Are you passionate about making a difference in the lives of children with complex neurological conditions and their families? The JJMF is looking for a Programs & Events Intern—to join our team!

Learn more & apply today to join our team and make a difference!