Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Resource Spotlight: Education
While parenting a child with undiagnosed, neurological conditions can be incredibly rewarding, it requires educational support that empowers you with information and expert guidance that you and your child need to thrive. Visit JJMF’s website for our curated list of local and national education resources.

Bikes for Kids
Each November, Variety St. Louis distributes therapeutic bikes to qualified families in the St. Louis area. Applications are open to families of children, birth to age 21, with physical or developmental disabilities who are unable to ride a standard bike. Learn more.

Bookmarked
“…I recognize the power of being aware of the sensations in my body and the thoughts racing in my head. There is power in noticing and then observing, nonjudgmentally…” Read Genny’s reflection on the book, Real Happiness: The Power of Meditation (Salzberg, S., 2010)

Board Spotlight
Hannah Hufford, co-owner of Hufford’s Jewelry and a former nurse, is a long-time friend of Genny and her family. Hannah saw firsthand the struggles Genny and Matt faced while caring for June. Read more…

Virtual Events
July featured connections with our community through Music Therapy with Midwest Music Therapy and Trauma-Informed Yoga with Colleen Caul. Our virtual events continue to reach new families from coast to coast! Sign up for events on our website.

On the Blog
“…a brief appointment at my ophthalmologist reminded me that it’s usually not until we’ve hiked the entire mountain, are walking away from it, and, incidentally, turn around to see what we actually accomplished. It’s there that we realize just how strong we are.” Read Genny’s latest essay, “In Awe: Looking Back With Fresh Eyes” on the blog.