Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

An Evening of JOY
An amazing community of people meaningfully showed up to help make the paths easier for children bravely facing the challenges of their conditions, just like June did. Through your generosity, we raised $158,000 to support our mission. Special thanks to our co-chairs and sponsors, volunteers, Tim Convy, and Acoustik Element for helping make the evening a huge success.

Impact
Watch this year’s Evening of JOY guest of honor, Karlita Blackwell, share her son Ezra’s story and how the JJMF has made an impact on their lives through community and financial assistance.

Resource Spotlight | Palliative Care
November marked National Hospice and Palliative Care Month. Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together to improve the quality of life for both the patient and the family. Click for resources.

Did you know?
Around 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Children account for 6.3 out of every 1000 cases. November was Epilepsy Awareness Month. Learn more.

Bookmarked
Raising a Rare Girl: A Memoir (Lanier, H. 2020) — An eye-opening inside look at the experience of raising a child with a medically complex condition. Heather’s honesty gives parents of neuro-typical children valuable perspective and understanding while parents of medically complex children will find relatable shared experiences.

Respite Care Solutions
Respite care is our #1 service requested. Your donations this giving season will help expand our critical respite care program, connecting more families to the relief they need by providing access to reliable respite care through connections with trustworthy care providers. Thank you to all who helped kick off our end-of-year campaign with a gift on #GivingTuesday. Donate today.