Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Only 4 days left to purchase tickets to An Evening of JOY
Get your tix today and join us Wednesday, November 16 at the Hall at Olive + Oak for An Evening of JOY! Unable to attend? Participate virtually in raffles (open now) and the silent auction (opening 11/14). For details, click here.

Volunteers needed for An Evening of JOY
We need your helping hands to make An Evening of Joy a success! If you are interested in joining us as a volunteer during this year’s event, we would love to have you on November 16th! Sign up here.

Respite Care Solutions
As we continue our work to address the challenges of respite care solutions, JJMF Board Member and community parent Annie Harper presented to medical and PT students at Washington University to recruit high-quality respite care providers to be connected with families. Our respite care program is currently in its pilot phase, but we are hoping to expand it in 2023. If your family is local to the St. Louis area and you are interested in connecting with respite care providers through this program in the future, please email us to be added to the list. 

On the Blog
In memory of her son William, Justine Aubuchon reminisced on JJMF’s first “Not-So-Haunted House” Halloween Party in 2019. We are honored to share her heart-warming reflection.“Having a child with a disability changed my visions of holidays. Holidays brought on a lot of grief, anxiety, and isolation...When I shared the JJMF event invite with some friends, everyone was overjoyed! We felt included and empowered.”  Read more.

Free Community Events
JJMF families enjoyed a fun Music Therapy session featuring Halloween favorites Boogie Pumpkin and Halloween Hoo. RSVP here for November and December Music Therapy. Take time for self-care this holiday season and enjoy JJMF Yoga On Demand, available thru Dec. 31.

Apply for Financial Assistance
The next JJMF Grant Application deadline is November 15. JJMF Grants help to pay for many essential items not covered by insurance, such as medical and respite care, medications, medical equipment, in-home nursing, specialized formula, therapy, and more. Learn more.

Bookmarked
The Boy, the Mole, the Fox and the Horse (Mackesy, C. 2019) — On a shared adventure, this foursome discovers life lessons on vulnerability, bravery, kindness, wisdom, friendship, love, and hope. A must-have for all ages!

“Not-So-Haunted House” Halloween Party
This year’s party was so much fun! The costumes were cute and creative, but more importantly, the parents could just breathe a sigh of relief around other people who understand and get them. Click here to check out scenes from this fun night!