Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Call for Sponsors and Auction Donations
Event tickets will be available soon for “An Evening of JOY” on Dec. 8th, a live event supporting our 2nd Annual Comfort + JOY fundraising campaign kicking off on Nov. 30th. Support the fundraiser through sponsorship or by donating an auction or raffle item. Click to learn more.

Pediatric Epilepsy Conference
Genny had the opportunity to share her family’s journey and her parental perspective at the Pediatric Epilepsy Conference: Improving Healthcare Outcomes in Childhood Epilepsy.She shared her insight on how healthcare providers can best support parents and families of children with medically complex, neurological conditions. Read Genny’s impactful presentation on the blog.

Virtual Events
The JJMF community gathered in September for Music Therapy, Yoga and a Coffee Talk on the topic of Respite Care with mental health therapist Katherine Aravamudan. In October, we are launching a NEW evening opportunity for moms to connect and dive deeper into Megan Logan’s book, Self-Love Workbook for Women. Sign up here for the first of a 3-part Self-Love Workshop series on October 12th.

Bookmarked
The Invisible String (Karst, P., 2000) is a heartwarming children’s book about the unbreakable connection of love. While it mentions death, its main focus is on a child’s fear of being separated from their parents or loved ones and reassures them that we are always connected to everyone we love by an invisible string.

Board Member Spotlight
We are proud to feature two very special board members in September! June’s grandmother and Board Secretary, Carol Size works tirelessly to assure continued outreach into the community through resources, services, and financial assistance. Richard Sexauer, dad to 3-year old Marlie who was diagnosed with a complex neurological condition in 2018, brings valuable advocacy and perspective that help guide our programs. 

Grant Applications
JJMF grants help to pay for many essential items not covered or only partially covered by insurance, such as medical care, medications, medical equipment, in-home nursing, respite care, and more. Our next grant application deadline is October 31st. Apply here.

Did you know?
Nearly 10% of JJMF’s funding is provided by individual, small businesses and organization fundraisers. Shout out to Knights of Columbus Kirkwood Council 2117 and First Community Credit Union for recent donations! We are grateful for these grassroots efforts that help spread the mission of the JJMF, and help fund programming for our community. Email us to find out how you or your organization can help.