Respite Care Provides Time to Breathe
A common question that families of neurologically complex kids ask the June Jessee Memorial...
Let yourself be supported
At the end of our weekly visit, June’s vision therapist, Jo, mentioned to me,...
JJMF 2023 Book Recap: A Year in Review 📚
We love sharing books with you that we've enjoyed, found helpful, or made us...
Holiday Gift Guide: Adaptive & Inclusive Edition 🎁
The holiday season has arrived, but for families of children with disabilities it can...
A Different Kind of Hope: The Diagnostic Odyssey Can Be Solved Even After Your Child’s Death
June had an undiagnosed, neurological disorder, which means we have no idea what caused...
Reflecting on the Rett Spectrum Family Conference at St. Louis Children’s Hospital
Last night, I had the opportunity to speak at the Rett Spectrum Family Conference...
👻 5 Halloween Tips for Medically Complex Families
Happy (almost) Halloween! We understand that holidays can be difficult for families of children...
10 Tips For Your Next IEP Meeting
The kids are back in school and for many families, that means resuming IEP...
Advancing Patient Care By Providing Support to Parents and Caregivers
What gets in the way of parents feeling like “good parents” and why is...
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