Reflecting on the Rett Spectrum Family Conference at St. Louis Children’s Hospital

Last night, I had the opportunity to speak at the Rett Spectrum Family Conference about caregiver wellness. I love talking to families about this vital topic because to be at our best for our children, we must take care of ourselves, too….especially as caregivers of children with severe neurological impairment. Often, if not always, we put our child’s needs above our own, which is not sustainable- or comes at a significant cost to our overall health and well-being.

The best part of the talk was the conversation that followed, and I loved hearing from parents what was working for them.