Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

June’s Story Goes Global
In loving memory of June, Genny’s essay “My Bravest Time: Letting June Die”, has been featured worldwide. Did you know June speaks German?! The essay has been read by more than 30,000 across the globe on TODAY Parents, TODAY Show, Scary Mommy, and Echte Mamas, Germany’s largest community for mothers.

Rising Tides Grant
Thanks to a Rising Tides grant from Child Neurology Foundation, the JJMF has been able to create a supportive network of programming and services to meet the changed needs of families in our community during the pandemic…read more.

Bookmarked
“I loved this book because my loss felt validated, and it helped me move forward in the uncertainty.” Read Genny’s reflection on Ambiguous Loss: Learning to Live with Unresolved Grief (Boss, P., 1999).

Trauma-Informed Yoga
Parents and caregivers took a moment for self-love during our Valentine’s weekend Virtual Yoga session with InspireMovement. This free class features gentle, restorative yoga for all bodies and all levels. Sign up here for our March 13th session.

Music Therapy
We sang and boogied this past weekend with Maria of Midwest Music Therapy! Our virtual program has created a wonderful opportunity for families across the U.S. to connect with the JJMF. Register for the March 27th session and sing-a-long anytime with our featured on-demand songs.

Resource Spotlight
Respite and Rehabilitation: When parents’ wellbeing and mental health are supported, it benefits the entire family. The JJMF website provides a curated list of local and national respite resources.

On the Blog
“We have had to be everything to our children in the pandemic, and it is too much. It can feel unbearable.” Read Genny’s latest essay, “Business as Usual” on the blog.

GLOW x JJMF
Thank you to all who supported our GLOW candle fundraiser. We have a few left if you missed out! Shop here.