Newsletter September 2023

Providing relief and support to help children with devastating medically complex, neurological conditions and their families in the St. Louis area and beyond.

Here’s what we’ve been up to…

Building Awareness
Special Celebration Event 
We are grateful to the Sigurdson family for hosting a special event for a group of JJMF supporters, providing an opportunity to share more about the important ways we’re working to make a difference for children with medically complex, neurological conditions and their families.

Community Support
In-Person Music Therapy 
The September in-person music therapy session was a wonderful day of families making connections. The kiddos had a blast singing, dancing and playing different instruments. To see more of the fun had by all, Click here.

Tri My Best Adaptive Triathlon
Congratulations to all the athletes who participated in St. Louis Children’s Hospital’s 9th Annual Tri My Best Triathlon! We were proud to cheer on the participants and share the JJMF mission with families in attendance. Learn more here.

Impact
At the 2022 JJMF lectureship at St. Louis Children’s Hospital, guest speaker Dr. Bob Macauley shared an important statistic that confirms why our mission is so important. Read Dr. Macauley’s words about the special patient population that is supported by the JJMF.

On the Blog
5 Halloween Tips for Medically Complex Families
We’re getting you ready for Halloween on the blog with five tips to help make the experience go smoothly. Check it out here.

Bookmarked 
Penny Wincer delivers an insightful and meaningful message in Tender: The Imperfect Art of Caring. Throughout the book, she highlights the joys and challenges of caregiving through sharing the relatable experiences of other caregivers, as well as providing a hopeful message.

Upcoming Events

“Not-so-Haunted” Halloween Party
Sunday, October 8 from 6:00 – 8:00 PM at The Magic House
Children with medically complex neurological disorders and their families along with JJMF supporters are invited to join for this free private event.
REGISTER HERE

An Evening of Joy
Friday, November 10 from 7:00 – 10:00 PM at The Reverie
Don’t miss our signature fundraising event, including live music, a delicious array of hors d’oeuvres and an open bar, plus heartfelt speakers sharing the impact of the JJMF’s programs. Can’t make it? You can still participate in the raffle and silent auction online.
BUY TICKETS

Looking for an easy way to support JJMF? Donate an item from our Amazon wish list to be included in a silent auction basket at An Evening of Joy!

Normal Broken by Kelly Cervantes Book Launch Event
Tuesday, November 14 at 7:00 PM at The Novel Neighbor
Join the JJMF for a book launch with Kelly Cervantes and a discussion surrounding grief with JJMF co-founder and executive director Genny Jessee. A book signing will follow the discussion, and proceeds from book sales at the event will benefit the JJMF.
REGISTER HERE